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Rare Disease Day 2027

February 28, 2027 @ 7:00 am - 10:00 pm
Join Rare Disease Day 2027 and help raise awareness, improve equity, and support the 300 million people living with rare diseases.

Rare Disease Day 2027 | Australia & New Zealand

28 February 2027

Rare Disease Day is the globally recognised awareness day dedicated to improving equity in healthcare, diagnosis, treatment, research and support for the more than 300 million people worldwide living with a rare disease.

In Australia and New Zealand, Rare Disease Day provides an opportunity for individuals, families, patient organisations, healthcare professionals, researchers, policymakers and supporters to come together and shine a light on the challenges faced by people living with rare conditions.

While each rare disease is unique, many people share common experiences, including delayed diagnosis, limited treatment options, difficulties accessing specialist care, and a lack of community understanding. Rare Disease Day helps amplify these voices and drive meaningful change.

Join us as we:

  • Raise awareness of rare diseases and their impact
  • Celebrate the strength and resilience of the rare disease community
  • Advocate for improved access to diagnosis, treatment and support services
  • Encourage greater investment in research and innovation
  • Support patients, families and carers who are navigating life with a rare disease
  • Build a more connected and informed community across Australia and New Zealand

Whether you are living with a rare disease, supporting a loved one, working in healthcare, conducting research, or simply wanting to show your support, your participation helps make rare diseases visible.

Together, we can help ensure that no one living with a rare disease feels unseen, unheard or alone.

How You Can Participate

  • Wear your Rare Disease Day colours
  • Share your story on social media
  • Host an awareness activity at your workplace, school or community group
  • Attend a local Rare Disease Day event
  • Help educate others about rare diseases
  • Support rare disease advocacy and research initiatives

Every action, conversation and shared story contributes to greater awareness, understanding and change.

Together, for equity, visibility and inclusion for everyone affected by rare diseases.

Details

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