The latest edition of The Count ITP Magazine is now available, exploring the research, advocacy, innovation, and patient-led initiatives shaping the future of immune thrombocytopenia (ITP). This Summer 2027 edition highlights the growing influence of patient voices in research, healthcare decision-making, treatment access and improving outcomes for people living with ITP.
Inside this issue, you’ll discover:
Reflections from the Rare Disorders New Zealand Hui, where Danielle Boyle joined rare disease leaders, clinicians, policymakers, and advocates to discuss implementing New Zealand’s Rare Disorders Strategy and opportunities to improve access to care and treatment.
The Forbidden Pharmacy Campaign, exploring treatment access challenges in Aotearoa New Zealand and why patient voices remain critical in advocating for equitable access to medicines.
Bringing the Patient Voice to BLOOD 2026, including highlights from the ITP Breakfast Meeting, Novartis ITP & PNH Symposium and the interactive ITPANZ exhibition booth that challenged healthcare professionals to experience life through the eyes of someone living with ITP.
I-WISh 2.0: The Numbers Confirm What Patients Have Been Saying for Years, featuring insights from one of the largest international studies exploring the burden of living with ITP and why fatigue, treatment burden and quality of life matter.
Clinical Trials Explained, helping patients understand how research drives treatment advances and why participation remains essential to improving future care.
The Emotional Side of Participating in Clinical Trials, exploring the mental health, emotional and practical realities of taking part in medical research.
The New ITP Control Tool, developed with input from patients, advocates and leading ITP experts, helping support more meaningful conversations between patients and healthcare professionals.
The Refreshed ITPANZ Website and ITP Support Hub, bringing together trusted information, patient resources, clinical trial information, educational tools, podcasts and downloadable guides in one easy-to-access location.
Updates from the Beyond the Count Podcast, featuring expert interviews, global perspectives and practical conversations about life with ITP.
Whether you’re living with ITP, supporting a loved one, working in healthcare, or simply wanting to stay informed, this issue delivers practical insights, global perspectives, and valuable resources to support every stage of the ITP journey.