Global ITP Awareness Week
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Global ITP Awareness Week

Join us as we, along with the rest of the Global ITP community, Like, Share and Be ITP Aware this month.

How you can get involved:

  • Like and share posts from ITP Australia amongst friends and family
  • Download the Global Awareness Sign, add your city & country in the box and share it on social media – don’t forget to use #Global4ITP and #ITPAustralia
  • Follow up on Facebook and Instagram
  • Hold a fundraiser to raise funds to help us spread the word about ITP
    • Add a ‘Fundraise Now’ button to your Facebook page and select ITP Australia as your charity of choice.

If you want to know more, get in touch today and get in touch today via email.

Global ITP Awareness Sign

Download and share on your Facebook page. Don’t forget to add #Global4ITP #ITPAustralia #ITPAware to your post.

Global ITP Alliance - 2019 Meeting
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Global ITP Alliance Meeting

At the end of July, I was invited to attend the 2019 Global ITP Alliance meeting which was held in Washington DC. As the representative of ITP Australia, and one of the newest members of the Global Alliance, I was welcomed and learnt a lot from the other organisations that span the globe.

Global ITP Alliance - 2019 MeetingThe 2019 meeting was attended by a number of representatives from various countries including Argentine, Brazil, China, Denmark, Finland, Italy, Netherlands, New Zealand, United Kingdom and the United State of America. There are more than 30 countries now included in the Alliance all working together to build awareness of ITP in their respective countries, providing patient support and advocacy.

The meeting was a great platform to share what each organisation is doing in each country, with some of the organisations running for more than 20 years. We discussed topics around sharing information, funding both in each country and potentially at an international level, patient advocacy, emerging treatments, patient quality of life and much more.

We presented as a group to a number of industry stakeholders and discussed the challenges we faced both locally and internationally regarding funding, treatments and resources, as all organisations are run and managed by volunteers, with the vast majority being touched by ITP in some form.

After a full day of meetings and discussions, we came together as a group and met with a number of the Medical Advisory Board for the PDSA.org and had a chance to share our individual ITP stories and get to know each other a little better.

Global ITP Alliance - 2019 Meeting

Global ITP Alliance – 2019 PDSA Conference

After the formal Global Alliance meeting had been held, we were invited to attend the 2019 ITP Conference. The 2019 Conference was the largest to date and was a wealth of information.

We also managed to let our hair down a little as we enjoyed the time we had together.

In the coming months, ITP Australia, with the assistance of and in conjunction with the Global ITP Alliance, will be bringing forward a number of new initiatives and building on the work already completed.

 

If you’re interested in finding out more about the Global ITP Alliance, head to the website here.

If you’d like to find out more about the 2019 PDSA Conference, head to their website.