We are conducting our first ITP patient survey
In Australia there is little information about ITP patients and their journey. Doctors and medical staff no little about who the patients are and the which Immune Thrombocytopenia treatments (or ITP Treatments for short) they undertake and their effectiveness. Treatments are offered without an indication if they’re going to work as each treatment effects and impacts patients differently.
At ITP we have started the conversation about patients treatments, we want to influence and change the how we access treatments throughout the journey.
Current Treatments for ITP include :
Why We Need You to Complete the Australian ITP Patient Survey
At ITP Australia, we are conducting our first ITP patient survey. This survey will gather valuable insights and provide a snapshot into patient experiences, treatments and impacts on patient quality of life.
The information provided by patients in this patient survey will assist ITP Australia in advocating for ITP patients with governments, relevant medical groups and pharmaceutical companies and the data will better inform decision-makers when determining treatment protocols and allocating funding. It will also provide valuable information on providing ongoing services and support to our patients.
We are asking all Australian ITP patients and carers to participate, regardless of the status of their ITP diagnosis whether you are actively being treated or currently in remission and take the 5 minutes to complete this survey. It is important that all patients have a voice and be heard in these survey results.
Do You know someone with ITP (Idiopathic thrombocytopenic purpura)?
ITP Australia would appreciate your help in forwarding this Immune Thrombocytopenia Patient Survey to anyone you know who is effected (patients and carers) by Idiopathic Thrombocytopenia Purpura.
Don’t really understand what ITP is?
Idiopathic thrombocytopenic purpura is an immune disorder in which the blood doesn’t clot normally. This condition is now more commonly referred to as immune thrombocytopenia (ITP). ITP can cause excessive bruising and bleeding. An unusually low level of platelets, or thrombocytes, in the blood results in ITP.