Living with ITP
Helpful information to help you day-to-day
Patients with ITP may be required to make some lifestyle changes. This includes avoiding anticoagulation medication including regular Ibuprofen (Nurofen, Advil Motrin), Aspirin, Warfarin (Coumadin) and Rivaroxaban, Apixaban and Dabigatran.
In addition, the reduction of alcohol consumption is advised as this can adversely affect blood clotting and platelet production. Choosing to engage in low-impact activities and sports can also reduce the risk of injury and bleeding.
Everyone’s ITP journey is as individual as each patient
Understanding and observing changes to symptoms and behaviours are important. It’s important to be present and understand your body.
Track your Results
Keeping a track of your symptoms, in some instances, can be tired and hard. Visit our Useful Links section of several apps that can help you not only track your counts, but your symptoms and treatments.
Keeping the lines of communication open with your medical professional is important. Using words that describe symptoms along with photos to appointments can assist them with your treatment plans. Ask questions that can help you to understand ITP, your treatments and their side effects.
Personal Health Plan
Do you have a personal health plan? With many autoimmune diseases, fatigue can be one of the common side effects. To combat this, exercise and diet changes can assist. These can include meditation, yoga or a 30-minute walk. They not only assist with you physically, but also assist with your mental wellbeing.
Use your Network
Join the ‘ITP for Aussies’ Facebook Group. This closed group was started more than a decade ago by Roz Klei Bryan. Use this space to speak freely with other patients and carers. You can find the link below.