Leading ITP clinicians come together and deliver consensus guidelines for the treatment of (ITP) in adult patients.
Written by Barbara Louvrencic – ITP Warrior, President of AIPIT Italy
Shared from UK ITP Support Association The Platelet published in November 2022.
The title could already be a story “ITP- in viaggio con Werlhof” in English “ITP- a journey with Werlhof” is an awareness campaign promoted by Sobi Italia with Aipit aps Onlus support.
From January 1, access to Thrombopoietin Receptor Agonists (TPORAs) became much easier for patients living with Immune Thrombocytopenia (ITP).
ITP Australia has worked to illuminate various locations across the country for the last couple of years to help raise awareness for Immune Thrombocytopenia.
During the November 2022 Pharmaceutical Advisory Committee (PBAC) meeting, Avatrombopag was tabled for chronic ITP Patients.
In November, Danielle travelled to Sydney to attend and participate in the 2022 National Rare Disease Summit organised by the national peak body for Rare Diseases, Rare Voices Australia.
Welcome to the latest ITP Australia – The Count Summer 2022 Edition.
Our quarterly newsletter includes information on the latest updates and activities by ITP Australia and in the world of Immune Thrombocytopenia.
Research shows that chronic conditions, including Immune Thrombocytopenia (ITP), can profoundly impact a person’s mental health.
From 1 January 2023, the maximum cost of general prescriptions under the PBS will fall for the first time in the 75-year history of the Pharmaceutical Benefits Scheme (PBS). It’s important that patients understand the changes and how they will affect them.
Over the last 3-6 months, ITP Australia has been working behind the scenes to develop some important patient collateral and materials and add more information across ITPAustralia.org.au.
We are very much aware that getting good quality sleep and developing regular sleep patterns are important to our overall health and well-being. Good sleep = Good health.
Welcome to the 2022 Spring Edition The Count. A quarterly newsletter created to update the ITP community on the latest updates and activities by ITP Australia and in the world of Immune Thrombocytopenia.
In this edition, we highlight the activities planned for 2022 ITP Awareness Week and how you can get involved, our recent trip to Seattle, Washington USA to meet with other international patient associations, focus on the importance of sleep, launch our NEW patient resources, and so much more!
Many of you have had the pleasure of meeting or hearing from Patricia. While she joined ITP Australia in early 2022, her ITP Journey started many years earlier. Read her story here.