Downloadable Patient Resources
Whether you’re a newly diagnosed ITP patient, a parent of a patient or a medical professional with ITP Patients, we have several easy-to-download resources to help you and your patients during their journey.
Feel free to contact us with other suggestions on resources or if you’d like to see these resources translated into other languages.
Please contact us for further information if you’d like to receive hard copies of either of the below.
Consensus Guidelines
Adult Treatment Guidelines
Child Treatment Guidelines
Guidelines for the Management of
Adult Immune Thrombocytopenia (ITP)
in Australia and New Zealand
American Society of Hematology
2019 Guidelines for Immune Thrombocytopenia
Australia and New Zealand
Consensus Guidelines for Paediatric Newly
Diagnosed Immune Thrombocytopenia (ITP) by ANZCHOG
Newly Diagnosed ITP Patient Brochure (Adults)
ITP Student Fact Sheet
Treatment Information Sheets
There are many treatments currently available for people living with ITP.
These downloadable information sheets are a great tool for ITP patients and healthcare professionals to help provide a clear and concise view of each treatment’s effectiveness and side effects.
Adult Treatment
Information Sheets
First-line Treatments
from Adults
Second-line Treatments
from Adults
Child Treatment
Information Sheets
First-line Treatments
from Children
Second-line Treatments
from Children
Other Tools
Shared Decision-Making Toolkit
Thanks to the great work done by the ITP Support Association in the United Kingdom, the Shared Decision Making Toolkit is now available worldwide and used by both ITP patients and ITP clinicians.
Grab your copy here and partner it with the ITP Discussion Guide below.
ITP Discussion Guide
The Making the right choices in ITP management and care – a shared decision making toolkit for patients has been sourced with permission from the ITP Support Association – https://itpsupport.org.uk/shared-decision-making-with-translated-toolkits/
The New ITP Discussion Guide has been sourced from the ITP Support Association – https://itpsupport.org.uk/the-new-itp-discussion-guide/
ITP & Me: An Essential Guide to ITP for Teenagers
ITP & Me is a unique book created by young people living with Immune Thrombocytopenia (ITP). It shares their experiences, challenges, and advice in their own words, making it a relatable and supportive resource for teenagers and young adults navigating life with ITP.
The book covers everyday topics such as:
- Managing school, friendships, and sport
- Coping with treatments and hospital visits
- Dealing with fatigue and emotional wellbeing
- Finding confidence and support in your ITP journey
Whether you’ve just been diagnosed or have lived with ITP for years, this resource can help you feel less alone and more informed.
ITPANZ is collaborating with the UK ITP Support Association to update this book to reflect the voices and experiences of teenagers in Australia and New Zealand — coming soon.