The International ITP Alliance is made up of dedicated patient organisations from around the world, each working tirelessly to support those affected by Immune Thrombocytopenia (ITP).

But who are the people behind these organisations? What drives them, and what do they hope for the future of the ITP community?

This series introduces you to the incredible individuals leading the charge in their respective countries. Through a set of thoughtful questions, we explore their connections to ITP, the most rewarding aspects of their work, and even a few fun facts—because advocacy is about passion but also people.

Name

Country

Organisation

How are you connected to ITP?

Describe yourself in 3 words.

Caroline Kruse

United States of America

Platelet Disorder Support Association

I was an ITP patient, but I’ve been in remission for 20 years.

Driven, passionate and resilient – My kids call me The Commander!

How long have you been working in your organisation?

18 years

What’s the most rewarding part of working with your organisation?

Knowing we are making a difference in helping patients and families navigate their journey with ITP.

What’s your greatest hope for people living with ITP (except a cure)?

Discovering the underlying pathophysiology for individual patients’ disease leading to targeted therapies so patients don’t have to cycle on and off treatments for years, dealing with toxic side effects and the emotional roller coaster of ITP.

Coffee or Tea?

Describe your perfect day.

Definitely coffee

My day starts with a strong cup of coffee, sitting on a beach reading a good book, followed by a great meal and glass of wine with my husband and kids, and ends with a delicious chocolate dessert!

If you could have a superpower, what would you choose?

The ability to never get stressed out or fear the unknown.