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31 Jul
News, Research, Treatments

HAVE YOUR SAY: PBAC Recommends all restrictions to be removed to TPORAs

  • Posted by ITPadmin
  • NPlate, PBAC, Revolade, Splenectomy, TPORAs

HAVE YOUR SAY: Submit your letter to us, and we will hand deliver them when we travel to Canberra on Monday 5th September 2022.

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20 Jun
News, Research, Treatments, Uncategorized

Recommendations by PBAC to give improved access to TPORAs to ITP patients

  • Posted by ITPadmin

The PBAC recommends removing restrictions to make it easier for ALL ITP Patients to access TPORAs.

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11 Oct
Medical Advisory Board, News, Research, Treatments

New treatment guidelines for adult ITP patients in Aust. & NZ

  • Featured
  • Posted by ITPadmin

Leading ITP clinicians come together and deliver consensus guidelines for the treatment of (ITP) in adult patients.

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03 Nov
News, Research, Treatments

ITP Australia provides a submission into the Parliamentary Inquiry into approval processes for new drugs and novel medical technologies in Australia

  • Posted by ITPadmin
  • NPlate, PBAC, Revolade, Splenectomy, TPORAs

ITP Australia delivers a number of recommendations to improve treatment access for patients living with Immune Thrombocytopenia.

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National Strategic Action Plan for Rare Diseases.
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28 Feb
News, Research

National Strategic Action Plan for Rare Diseases

  • Posted by ITPadmin

Delivered in February 2020, the National Strategic Action Plan is the first national and coordinated plan to help deliver better outcomes for more than the estimated 2 million Australians living with a rare disease.

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International Consensus Report for the investigation and treatment of Immune Thrombocytopenia
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10 Jan
News, Research

International Consensus Report for ITP

  • Posted by ITPadmin

Included in the following article is the recently published and updated International Consensus Report for the investigation, treatment and management of Immune Thrombocytopenia (ITP) in all patients.

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I-WISh Study - Patients with immune thrombocytopenia frequently experience severe fatigue but it is under-recognized by physicians.
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10 Dec
Research

I-WISh ITP Patient Survey – Patient v Physician Perceptions

  • Posted by ITPadmin

Through the ITP World Impact Survey (I-WISh), which was a collaborative global survey completed by over 1,400 ITP patients and 480 health professionals, we review the perceptions between physicians and patients and identify that fatigue is under-recognised as a symptom and its impact on a patients Quality of life (QoL).

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I-WISh Survey
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20 Nov
Research

What is the ITP World Impact (I-WISh) Survey

  • Posted by ITPadmin

The ITP Impact Survey (I-WISh) is a collaborative investigation among global ITP experts, patient support groups and Novartis Pharmaceuticals Corporation.

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ITP patient perceptions on splenectomy outcomes
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31 Oct
News, Research

ITP patient perceptions on splenectomy outcomes

  • Posted by ITPadmin
Led by a group of ITP physician experts and patient advocacy organizations including PDSA, the ITP World Impact Survey (I-WISh) conducted a study to examine patient perception on splenectomy on ITP patients.

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05 Jul
Research

Real ITP Survey Reveals Negative Impact on the Quality of Life of Patients

  • Posted by adworxadmin

The interim results for the I-WISh survey undertaken by Novartis, which collaborated with 480 health care providers across 13 countries, found that a high percentage of patients with Immune Thrombocytopenia experienced negative impacts to their quality of life due to the immune disease.

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