Every patient’s voice is vital in helping us understand the realities of life with ITP and in shaping the future of care. That is why ITP Australia and New Zealand (ITPANZ) is proud to launch the 2026 ITP Patient Survey, open until Saturday, 31 January 2026. This survey is your opportunity to share your experiences and ensure that patient perspectives guide research, advocacy, and support across Australia and New Zealand.
Why Your Voice Matters
The survey is open to all adults (18+) diagnosed with ITP in Australia and New Zealand. It explores key areas such as diagnosis, treatment access, mental health, menstruation, clinical trials, healthcare equity, and the impact of treatments like steroids. By participating, you will be contributing to a stronger understanding of the lived experience of ITP, which will guide ITPANZ programs, advocacy efforts, and future research.
How Your Input Will Be Used
The insights gathered will inform the development of new resources, including treatment information sheets, wellbeing tools, and family support guides. They will also strengthen our case for policy change and improved access to treatment. With ethics approval sought in both Australia and New Zealand, the findings may also be published in medical journals, ensuring that the patient perspective is heard at the highest levels of healthcare decision-making.
“Our priority is to make sure we deliver on the needs of patients, so that we can support them at the most critical times. This survey is a vital step in ensuring that the voices of our community shape the future of ITP care.”
Danielle Boyle
Founder, CEO and ITP Patient
Make an Impact
Now it is your turn to make an impact. By completing the survey, you will help us design programs and activities that truly reflect the needs of the ITP community.
This survey is sponsored by
