SUPPORTING THE ITP COMMUNITY: Tools, guides & more to help patients, carers and the ITP Community

Living with Immune Thrombocytopenia (ITP) can be challenging, but no one should feel alone on the journey.

ITP Australia and New Zealand (ITPANZ) have developed a wide range of resources to support patients, carers, families and the wider community. These tools provide practical guidance, emotional support and opportunities to connect.

New Resources

Conversations That Count: Co-created with patients, carers, healthcare professionals and a clinical psychologist, this deck of cards spark meaningful conversations and strengthens support networks.
ITP & Me Teen Book: Adapted for Australia and New Zealand, this book helps teens, siblings, parents and friends understand ITP in clear, relatable language.
Third-line Treatment Information Sheets: Five new sheets explain advanced treatment options, helping patients and carers make informed decisions.
Dental and Oral Health Brochure: A new guide providing practical advice for patients and families on managing oral health and dental care with ITP, including tips for safe treatment and communication with dental professionals.

Existing Resources

Kids School/Daycare Card: A simple tool for teachers and carers to understand ITP and keep children safe.
First-line and Second-line Treatment Sheets: Easy-to-read guides explaining common treatment pathways.
Treatment Guidelines for Children & Adults: Evidence-based recommendations to support clinical care.
Monthly Emails: Updates, news and resources delivered directly to your inbox.
Merchandise: Items that raise awareness and show support for the ITP community.
ITP Wallet Cards: Emergency information cards for patients to carry at all times.
Events: Virtual sessions and the annual ITP Patient Conference, bringing patients, carers and experts together.
Shared Decision-Making Toolkit: Developed with the UK ITP Support Association, this toolkit empowers patients and clinicians to make decisions together.
Buzzy Kits: Tools to reduce needle pain and anxiety during blood tests.

Digital Platforms

Beyond the Count Podcast: Real stories and expert insights from patients, carers and clinicians, exploring the lived experience of ITP.
ITPANZ YouTube Channel: Presentations and recordings from past ITP Patient Conferences, plus educational videos.
Social Media: Follow ITPANZ on Instagram, Facebook and LinkedIn for updates, stories and community engagement.
ITPANZ.org.au: Home to all resources, news and support. Our News section includes almost 150 articles, stories and updates that can be searched easily.

GRAB YOUR RESOURCES TODAY!

All of these resources are available through ITPANZ. Many are free, with only postage costs to cover. Links have been included above to get yours.

You can also download our comprehensive suite, order your copies, explore the full range of resources, and take the next step toward feeling supported and informed.