Since launching the ITPAustralia.org.au last year, we’ve been working behind the scenes to bring ITP patients and carers up-to-date Australian information about Immune Thrombocytopenia. We’ve been inundated by support from patients, carers and medical professionals from both here in Australia, but also abroad.
Meet Hudson. He’s a typical toddler that has had ITP for nearly his entire life. Learn a little about his journey through the eyes of his parents Brianna and Trent.
The ITP Support Association held their 21st Annual Conference in the beautiful city of Chester, at the historic racecourse in the North West of England in October 2018. Here’s what they got up to.
While the PDSA held their first Regional Meeting in Australia in March 2018, they hold a conference annually in the USA bringing together carers and patients and providing new information on ITP through their growing network of medical advisors.
The interim results for the I-WISh survey undertaken by Novartis, which collaborated with 480 health care providers across 13 countries, found that a high percentage of patients with Immune Thrombocytopenia experienced negative impacts to their quality of life due to the immune disease.
Many patients who have ITP have either undergone a splenectomy, or it’s part of the discussion around treatment. If you’re in Victoria, Tasmania and Queensland, you are added to their register to receive regular updates and information. Check out what their latest Health Update has to say.
At the end of March 2018, more than 30 people travelled from across the country to attend the first PDSA Regional Meeting in Melbourne, Victoria.