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03 Nov
News, Research, Treatments

ITP Australia provides a submission into the Parliamentary Inquiry into approval processes for new drugs and novel medical technologies in Australia

  • Posted by ITPadmin
  • NPlate, PBAC, Revolade, Splenectomy, TPORAs

ITP Australia delivers a number of recommendations to improve treatment access for patients living with Immune Thrombocytopenia.

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Influenza vaccine and ITP
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03 Apr
News

Should ITP patients have the influenza vaccine?

  • Posted by ITPadmin

At around this time each year in Australia, many ITP patients ask their primary care professional, whether it’s their GP or haematologist if they should be getting the annual influenza vaccine and there are always varying responses.

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Blood Clots in ITP
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08 Mar
Medical Advisory Board, News

Blood clots in ITP

  • Posted by ITPadmin

Dr Robert Bird, member of our Medical Advisory Board, has shared information about ITP patients being at an increased risk of blood clots and not just bleeding.

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National Strategic Action Plan for Rare Diseases.
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28 Feb
News, Research

National Strategic Action Plan for Rare Diseases

  • Posted by ITPadmin

Delivered in February 2020, the National Strategic Action Plan is the first national and coordinated plan to help deliver better outcomes for more than the estimated 2 million Australians living with a rare disease.

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COVID-19
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15 Feb
News

Coronavirus disease (COVID-19) outbreak

  • Posted by ITPadmin

Coronaviruses (CoV) are a large family of viruses that cause illness ranging from the common cold to more severe diseases. A novel coronavirus (nCoV) is a new strain that has not been previously identified in humans.

On 30 January 2020, the WHO Director-General declared the novel coronavirus (2019-nCoV) outbreak a public health emergency of international concern.

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International Consensus Report for the investigation and treatment of Immune Thrombocytopenia
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10 Jan
News, Research

International Consensus Report for ITP

  • Posted by ITPadmin

Included in the following article is the recently published and updated International Consensus Report for the investigation, treatment and management of Immune Thrombocytopenia (ITP) in all patients.

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08 Nov
News

Introducing the ITP Australia Medical Advisory Board

  • Posted by ITPadmin
To ensure that we are providing patients and caregivers with accurate and up-to-date information, ITP Australia has pulled together a number of Australian and international ITP specialists to form a Medical Advisory Board.

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ITP patient perceptions on splenectomy outcomes
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31 Oct
News, Research

ITP patient perceptions on splenectomy outcomes

  • Posted by ITPadmin
Led by a group of ITP physician experts and patient advocacy organizations including PDSA, the ITP World Impact Survey (I-WISh) conducted a study to examine patient perception on splenectomy on ITP patients.

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International ITP Alliance
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16 Aug
News

International ITP Alliance Meeting

  • Posted by ITPadmin
At the end of July, I was invited to attend the 2019 International ITP Alliance meeting which was held in Washington DC. As the representative of ITP Australia, and one of the newest members of the International ITP Alliance, I was welcomed and learnt a lot from the other organisations that span the globe.

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Spleen Australia - Health Update Header
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26 Jun
News

Spleen Australia provides a health update

  • Posted by ITPadmin

Many patients who have ITP have either undergone a splenectomy, or it’s part of the discussion around treatment. If you’re in Victoria, Tasmania and Queensland, you are added to their register to receive regular updates and information. Check out what their latest Health Update has to say.

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