Stay Informed, Stay Empowered: Explore Our ITP Resources

At ITP Australia and New Zealand, we are committed to providing patients, caregivers, and healthcare professionals with reliable and accessible information to help navigate life with Immune Thrombocytopenia (ITP). Our patient resources have been carefully developed to offer practical support, answer common questions, and empower individuals to make informed decisions about their care.

What We Offer:

Newly Diagnosed Brochure: Receiving an ITP diagnosis can feel overwhelming. Our brochure provides essential information for newly diagnosed patients, including an overview of the condition, monitoring platelets, and what to expect in the early stages of ITP.

Treatment Guidelines: We provide access to the latest published medical guidelines for the diagnosis and treatment of ITP in Australia and New Zealand. These include guidelines for both adult and paediatric patients, helping healthcare professionals and patients make informed treatment decisions. Additionally, we offer resources on the American Society of Hematology (ASH) Guidelines, which outline best practices in ITP management.

Shared Decision Making: Treatment Treatment choices for ITP can be complex, and what works for one person may not be suitable for another. Our Shared Decision-Making resources help patients and healthcare professionals work together to choose the best treatment approach, considering individual preferences, lifestyle factors, and clinical evidence.

ITP Treatment Information Sheets: Understanding your treatment options is essential. Our guides outline how different treatments work, potential side effects, and what to consider when discussing options with your doctor.

Advocacy & Awareness Materials: Whether you want to educate your workplace, school, or community about ITP, our awareness resources can help you raise understanding and support for people living with the condition.

Patient Stories: Real-life experiences from people with ITP can be invaluable in helping others feel less alone. Our patient stories highlight diverse journeys and offer insight into different treatment paths and coping strategies.

Webinars & Educational Videos: We host webinars featuring leading haematologists, researchers, and patient advocates, providing expert insights on managing ITP and staying up to date with the latest developments.

ITP Wallet Cards: Our newest resource, the ITP Wallet Card, is an essential tool for patients. These free, pocket-sized cards provide crucial information about your condition and treatment, which can be lifesaving in emergencies. They ensure that healthcare professionals have quick access to the details they need to provide appropriate care. You can order yours today at ITPANZ.org.au.

Danielle Boyle, CEO of ITPANZ and an ITP patient herself, explains why these tools are so important:

Living with ITP can be unpredictable, but having the right resources means patients can feel more in control of their condition. Whether it’s understanding treatment choices, learning how to self-advocate, or simply knowing they’re not alone, we want to provide information that makes a real difference.

What More Do You Need?

We are always looking for ways to improve and expand our resources. If you’d like to see something—whether it’s a new educational guide, a support tool, or information on a specific topic—please let us know! Your feedback helps us continue providing relevant and meaningful ITP community support.